NOTA Cares

新しい記事を作成しました

6 d - 翻訳

Guiding Tyrosinemia Type 2 Families | Support, Care & Hope from NOTA Cares | #tyrosinemia Type 2

Guiding Tyrosinemia Type 2 Families | Support, Care & Hope from NOTA Cares

Tyrosinemia Type 2 is a rare condition that affects children and families in deeply personal ways

お気に入り

彼のプロフィール写真を変更しました

3 の

お気に入り

さらに投稿を読み込む

情報

2 投稿
https://notacares.org/
男
に住んでいます United States
にあります USA

約

NOTA Cares is a global nonprofit organization dedicated to supporting individuals and families affected by Tyrosinemia—a rare genetic metabolic disorder. Originating from a Facebook group, it has evolved into a worldwide community offering resources on diagnosis, treatment, and dietary management. Through advocacy, education, and events like the NOTA Experience, NOTA Cares fosters connection, empowers patients, and promotes early detection and comprehensive care.

アルバム

(0)

続く

(1)

Lester Borthwick

フォロワー

(0)

グループ

(0)

6 d - 翻訳

Guiding Tyrosinemia Type 2 Families | Support, Care & Hope from NOTA Cares

3 の

言語